Will Greene, pictured with son Ari, will run the NYC Marathon in November to raise funds for rare disease research.
Will Greene
This November, I’ll be running the New York City Marathon—not just to test my endurance, but to raise funds for research on Prader-Willi syndrome (PWS), a rare and complex genetic condition that affects my son Ari.
Many SaddleBrooke residents know my parents Abby and Randy Greene and may remember me from a talk I gave at MountainView Ballroom West in late 2022 about the realities of raising a child with PWS. The condition presents many challenges, including developmental delays, low muscle tone, intellectual disability, and, most seriously, feelings of constant and insatiable hunger.
These symptoms can lead to social isolation, intense anxiety, and, without proper care, life-threatening obesity. Thanks to medical advances like daily growth hormone therapy, Ari is thriving, but he faces many lifelong hurdles.
At the time of his birth, my family and I were living in Singapore, but we moved to California last year to be closer to family and access better care. Soon after, I joined the board of the Foundation for Prader-Willi Research, a nonprofit that has become a driving force in advancing science and care for people living with PWS.
Now, I’m combining my passion for endurance athletics with my commitment to advocacy. I’ve set a goal to raise $26,200 to support research and treatments that could change the future for kids like Ari. Thanks to the generosity of friends, family, and supporters, including many here in SaddleBrooke, we’re already well on our way.
Rare diseases often don’t receive the funding they deserve, and progress depends on grassroots efforts. That’s why I’m inviting you to be part of this journey. Whether by donating, sharing our story, or simply cheering from afar, your support makes a real difference.
Together, we can give kids like Ari a better shot at a full and healthy life.
To contribute or learn more, visit the website impact.fpwr.org/fundraiser/6498213.